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Resources
List of Cancer Clinical Trials Groups
There are 14 national Cancer Cooperative Trials Groups (CCTGs) in Australia. These groups conduct world-class multi-disciplinary research for cancer control. Clinical trials help to inform clinical practice and improve the survival and quality of life of cancer patients.
ALTG - Consumer Advisory Panel (CAP) Consumer Engagement Document
This document provides details on the structure and functions of the Consumer Advisory Panel that provide advice on specific studies, general research directions, and priorities from a consumer perspective to the Australian Lung Cancer Trials Group (ALTG).
ALLG -Consumer Representative Terms of Reference
This document describes the purpose of the Australasian Leukaemia & Lymphoma Group (ALLG) and the roles and requirements of consumer representatives.
AGITG - Consumer Advisory Panel Terms of Reference
This document describes the purpose of the Australasian Gastrointestinal Trials Group (AGITG) and the roles and requirements of consumer representatives.
AGITG - Consumer Advisory Panel Concept Assessment
This document is an assessment checklist that is used by Consumer Advisory Panel members when assessing a research concept within the Australasian Gastrointestinal Trials Group (AGITG).
AGITG - Consumer Advisory Panel Concept Review Process
This document has been developed by the Australasian Gastrointestinal Trials Group (AGITG) to outline the steps required for the efficient and effective review of new clinical trial concepts.
This document has been developed by the Australasian Gastrointestinal Trials Group (AGITG) and contains terms that may be used, but not limited to gastro-intestinal clinical trials research.
AGITG - Organisational Acronyms
This document contains a list of organisational acronyms related to cancer clinical trial research.
ANZBCTG – Background to the Consumer Advisory Panel (CAP)
This document provides background information on the Consumer Advisory Panel (CAP) that is part of the ANZ Breast Cancer Trials Group (ANZBCTG).
This document has been developed by the ANZ Breast Cancer Trials Group (ANZBCTG) and contains terms that may be used, but not limited to breast cancer clinical trials research.
Cancer Australia - Affected by Cancer Resources
This is a link to the Cancer Australia website and resources that relate to Consumer participation; consumer training and mentoring and peer facilitated cancer support groups.
Cancer Australia - Consumer Participation Resources
This is a link to the Cancer Australia website and consumer participation resources.
Cancer Australia - Consumer Training and Mentoring Guide
This document provides advice to organisations on how to train and mentor consumers working with cancer clinical trial groups.
Cancer Australia - National Consumer Framework
The National Framework for Consumer Involvement in Cancer Control has been developed by Cancer Australia in partnership with Cancer Voices Australia to enhance meaningful consumer involvement at all levels of cancer control in order to improve outcomes and experiences for people affected by cancer.
This document is a series of powerpoint presentation developed by the Victorian Cancer Agency on Consumer Participation in Cancer Research.
Health Issues Centre - Consumer participation in cancer research a consumer resource
This document has been developed by the Health Issues Centre in Victoria with funding from the Victorian Cancer agency and is a source of information that would support the work of consumers, carers and interested community members involved in cancer research.
Health Issues Centre - Consumer participation resource for researchers
This document is a resource for researchers and contains advice on involving cancer consumers in research.
JCAG Brief on PIS and Informed Consent
This document explains the terms informed consent and participant information statements and includes a content checklist for Participant Information Statements.
This is a checklist used by members of the Joint Community Advisory Group (JCAG) in PoCoG to review study documents.
This document has been developed by PoCoG and is used by the Joint Consumer Advisory Group to assess proposals.
JCAG Review Form for PoCoG CDW
This document is used by PoCoG JCAG members to review study design concepts in the early stages of development.
Leukaemia Foundation - Fact sheet, Clinical Trials: Latest treatment and best options
This document is a fact sheet developed by the Leukaemia Foundation on treatment and best options.
NSW Health - Models for engaging consumers and clinicians in policy: rapid reviews
This document is an evidence check review that has been developed using the Sax Institute, ‘Evidence Check Review’ methodology. The document reviews the models for engagement consumers and clinicians in policy.
PoCoG Joint Advisory Committee webpage
This is a link to the Psycho-Oncology Cooperative Research Group (PoCoG) website and contains information about the joint initiative between PoCoG and the Primary Care Cancer Clinical Trials Group (PC4) on the Joint Community Advisory Group (JCAG). The JCAG provides a mechanism for advice to be received on general research directions and priorities from community's perspective for both Trial Groups.
This is an information sheet and schedule for Consumer reviews at PoCoG.
This is a link to the Trans Tasman Radiation Oncology Group website (TROG)- Patient information section.
TROG - Understanding Cancer Research Trials
This is a link to the Trans Tasman Radiation Oncology Group website (TROG)- Understanding Cancer Research Trials section.
Virtual Medical Centre - What is Cancer?
This is a link to a website that provides a range of information on issues such as what is cancer; drugs; supplements; diagnosis and treated.